NAMI Texas has done it again!(With a little help from me as the editor.)
We have a group of books for sale on Amazon.com. Visions for Tomorrow, The Basics.There is a series of these "digests", each covering a mental illness in the VFT curriculum, providing basic and valuable information for families who are dealing with a first time crisis or still trying to get information to better provide for their child's needs. These books from the original Visions for Tomorrow curriculum are to provide basic information to the general public.
Utilizing key information and strategies, there is a book for most of the major diagnosis.Each book will deal with the symptoms of the diagnosis, information on the brain, tips, empathy, record keeping, communication strategies, coping and basics on the justice system and advocacy. While this is not the full VFT curriculum, it is a good starter book of information on just what is says – the basics. Included as well is information about NAMI and how to join.
The list soon to be available is:
Diagnosis - Bipolar Disorder and Depression
Diagnosis - Borderline Personality
Disorder Diagnosis - Eating
Disorders Diagnosis - Schizophrenia and Schizoaffective Disorder
Diagnosis - Anxiety Disorders
Diagnosis - Reactive Attachment Disorder
Diagnosis - Obsessive Compulsive Disorder
Diagnosis - ADHD
You can find each of these books on Amazon by going to Amazon.com and typing in NAMI Texas in the search box. The list of books will appear and let you know if they are ready for ordering as they come available.
So support NAMI Texas, and also support your local communities - buy this book and give it to families in need, your community centers, MHA and anyone else that support children with a mental illness diagnosis.
Monday, July 20, 2009
Sunday, July 19, 2009
What do you think about this article - I want to know.
AUSTIN – Jose Fernandez Sanchez was delusional when he broke a window to enter his neighbor's apartment. The schizophrenic and epileptic 45-year-old, who had gone to an Austin hospital the day before, complaining of hearing voices, told police he was trying to light a candle for his dead mother. But instead of taking Sanchez to get medical attention, authorities started deportation proceedings against him, leaving the legal permanent resident in a detention-center cell for eight months. By the time a judge saw Sanchez, he was so catatonic that he couldn't answer a simple question.
Sanchez was one of the lucky few: His siblings pooled their money to hire an attorney, who made a compelling case to an immigration judge. Sanchez went from the detention center to a San Antonio psychiatric hospital, where he should have been all along.
But most mentally ill immigrants aren't so fortunate. They get limited mental-health care while in detention, advocates say – and that's only if they're diagnosed. They aren't entitled to competency hearings before standing trial. And the majority of them face judges without legal counsel, and with little recourse to defend themselves from deportation.
"I felt like I didn't have the power to get help. They didn't care how they were taking care of me," said Sanchez, who emigrated from Mexico in 1988 and received amnesty in the United States. "I was very scared, because I knew if I was sent back to my country, they wouldn't be able to help me like the U.S."
National guidelines
Immigration detention officials say they have strict guidelines for mental-health care in detention centers. All inmates receive a mental-health screening as part of their intake exam, they say. Those with suspected mental illness are referred for more tests and treatment. In fiscal 2008, detention-center personnel performed nearly 30,000 mental-health interventions – including providing emergency care to detainees seen as suicide risks.
"We are continuing to work ... to improve the services and the availability of health care to those in our custody," said Tim Counts, spokesman for U.S. Immigration and Customs Enforcement.
But immigration court officials acknowledge there's little guidance for how to handle mental health once these detainees come before a judge. Although judges can't accept an admission of guilt from an "unrepresented incompetent," there are no immigration-court proceedings to determine a person's competency. Judges have to go with their gut – which can be tough to gauge with language barriers and the frequent use of long-distance video conferencing.
"There are no rules or any guidelines or any laws related to determining mental competency," said Elaine Komis, spokeswoman for the Executive Office for Immigration Review, which oversees deportation hearings for the U.S. Department of Justice. "When judges encounter someone who seems to be mentally incompetent, they do try as much as possible to arrange for some kind of pro bono counsel."
Social-justice advocates say that's not good enough. Researchers from the nonprofit advocacy group Texas Appleseed have teamed up with pro bono attorneys from the Akin Gump law firm to study mental-health procedures in detention and deportation proceedings. Their focus is on Texas, which houses a third of the country's immigrant detainees and is home to eight of the nation's 55 immigration courts.
These advocates say detention facilities don't consistently follow mental-health standards, and often don't have enough mental-health workers to handle the estimated 15 percent of detainees suffering from mental illness.
Until early this year, they say, two Texas detention centers housing a combined 2,700 people shared a single psychiatrist. As a result, they say, detainees who receive mental-health treatment in the community rarely get it once they're incarcerated. They miss medicine doses, get misdiagnosed or are prescribed drugs with which they aren't familiar.
"There are no real standards for diagnosing or dealing with mental-health issues while in the system," said Steve Schulman, a partner with Akin Gump who heads the firm's pro bono practice.
Lack of hearings
Advocates say that even if someone is diagnosed with mental illness in the detention setting, it's rare for that to get passed along to a judge.
Unlike in the criminal- justice system, there are no mental-competency hearings. Fewer than half of detainees have legal representation. Immigrants represented by attorneys are 50 percent more likely to avoid deportation, but the government has no obligation to appoint counsel for those who can't afford it.
"The end result is that people are being deported without regard for their mental health," said Ann Baddour, senior policy analyst at Texas Appleseed.
In one case, advocates say, a severely mentally ill woman was nearly deported to Russia because she told authorities she was a Russian immigrant. She was actually a U.S. citizen from Indiana. In another, a Haitian immigrant whom a criminal court had declared incompetent to stand trial was taken into custody by immigration officials at a psychiatric hospital.
Sanchez's siblings are sure their brother would have wound up back in Mexico – or worse, dead – if they hadn't been able to hire an attorney.
"He was never evaluated properly, never given proper treatment," said Sanchez's brother, who asked not to be identified because of his immigration status. "He was all alone in there. We feared the worst, that he would be deported or even take his own life."
Sanchez was one of the lucky few: His siblings pooled their money to hire an attorney, who made a compelling case to an immigration judge. Sanchez went from the detention center to a San Antonio psychiatric hospital, where he should have been all along.
But most mentally ill immigrants aren't so fortunate. They get limited mental-health care while in detention, advocates say – and that's only if they're diagnosed. They aren't entitled to competency hearings before standing trial. And the majority of them face judges without legal counsel, and with little recourse to defend themselves from deportation.
"I felt like I didn't have the power to get help. They didn't care how they were taking care of me," said Sanchez, who emigrated from Mexico in 1988 and received amnesty in the United States. "I was very scared, because I knew if I was sent back to my country, they wouldn't be able to help me like the U.S."
National guidelines
Immigration detention officials say they have strict guidelines for mental-health care in detention centers. All inmates receive a mental-health screening as part of their intake exam, they say. Those with suspected mental illness are referred for more tests and treatment. In fiscal 2008, detention-center personnel performed nearly 30,000 mental-health interventions – including providing emergency care to detainees seen as suicide risks.
"We are continuing to work ... to improve the services and the availability of health care to those in our custody," said Tim Counts, spokesman for U.S. Immigration and Customs Enforcement.
But immigration court officials acknowledge there's little guidance for how to handle mental health once these detainees come before a judge. Although judges can't accept an admission of guilt from an "unrepresented incompetent," there are no immigration-court proceedings to determine a person's competency. Judges have to go with their gut – which can be tough to gauge with language barriers and the frequent use of long-distance video conferencing.
"There are no rules or any guidelines or any laws related to determining mental competency," said Elaine Komis, spokeswoman for the Executive Office for Immigration Review, which oversees deportation hearings for the U.S. Department of Justice. "When judges encounter someone who seems to be mentally incompetent, they do try as much as possible to arrange for some kind of pro bono counsel."
Social-justice advocates say that's not good enough. Researchers from the nonprofit advocacy group Texas Appleseed have teamed up with pro bono attorneys from the Akin Gump law firm to study mental-health procedures in detention and deportation proceedings. Their focus is on Texas, which houses a third of the country's immigrant detainees and is home to eight of the nation's 55 immigration courts.
These advocates say detention facilities don't consistently follow mental-health standards, and often don't have enough mental-health workers to handle the estimated 15 percent of detainees suffering from mental illness.
Until early this year, they say, two Texas detention centers housing a combined 2,700 people shared a single psychiatrist. As a result, they say, detainees who receive mental-health treatment in the community rarely get it once they're incarcerated. They miss medicine doses, get misdiagnosed or are prescribed drugs with which they aren't familiar.
"There are no real standards for diagnosing or dealing with mental-health issues while in the system," said Steve Schulman, a partner with Akin Gump who heads the firm's pro bono practice.
Lack of hearings
Advocates say that even if someone is diagnosed with mental illness in the detention setting, it's rare for that to get passed along to a judge.
Unlike in the criminal- justice system, there are no mental-competency hearings. Fewer than half of detainees have legal representation. Immigrants represented by attorneys are 50 percent more likely to avoid deportation, but the government has no obligation to appoint counsel for those who can't afford it.
"The end result is that people are being deported without regard for their mental health," said Ann Baddour, senior policy analyst at Texas Appleseed.
In one case, advocates say, a severely mentally ill woman was nearly deported to Russia because she told authorities she was a Russian immigrant. She was actually a U.S. citizen from Indiana. In another, a Haitian immigrant whom a criminal court had declared incompetent to stand trial was taken into custody by immigration officials at a psychiatric hospital.
Sanchez's siblings are sure their brother would have wound up back in Mexico – or worse, dead – if they hadn't been able to hire an attorney.
"He was never evaluated properly, never given proper treatment," said Sanchez's brother, who asked not to be identified because of his immigration status. "He was all alone in there. We feared the worst, that he would be deported or even take his own life."
Wednesday, July 8, 2009
Healthcare Reform Bias
Obama Administration Continues Institutional Bias in Healthcare Reform
Washington, D.C.--- The nation’s largest grassroots disability rights organization, ADAPT, expressed outrage today at the Obama administration’s selective endorsement of one piece of proposed long term care legislation while refusing to support a companion measure aimed at=0 Aeliminating the institutional bias in Medicaid for aging or disabled lower income people that Obama, with strong support from over 80 national disability and aging organizations, co-sponsored as a Senator.
July 6, Kathleen Sebelius, Secretary of Health and Human Services, sent a letter to Sen. Edward Kennedy, Chair of the Senate Health, Education, Labor and Pensions Committee, expressing President Obama’s support for Kennedy’s “CLASS Act,” which would allow middle class Americans to set aside money from their paychecks in anticipation of the expenses they will likely face for long-term services and supports as they age, or acquire a disability. After paying into the fund for at least 5 years, workers or their non-working spouses could draw on the fund for long-term services and assistance, either in a nursing home or in the community. Workers who wish could opt out of the program, an outcome more likely in tough economic times or in cases where low worker-wages barely cover individual or family survival expenses.
“Those of us with disabilities, who are aging, and who aren’t able to work are outraged that the President has issued public support for this primarily middle class legislation, and has completely ignored the companion legislation that would include lower income disabled and older people in reform of long term services and supports, and health care reform,” said Bob Kafka, Texas ADAPT Organizer. “It’s like we don’t exist!”
ADAPT and a multitude of other national disability and aging organizations in Washington have gone on record in support of Sen. Kennedy’s CLASS Act only if it is paired with a “fix” for Medicaid addressing lower income and non-working people, similar to provisions contained in the Community Choice Act (CCA). CCA inserts the concept of “personal choice” into the law, adding language that mandates states to pay for help in a person’s own home the same way the law mandates them to pay for nursing homes. Current law can force people with disabilities and who are aging into nursing homes in order to receive services that can just as easily be delivered in the community. Research has demonstrated that community-based assistance is almost always less expensive.
“When President Obama was a senator, he co-sponsored CCA,” said Dawn Russell, ADAPT Organizer from Denver Colorado, “and when he campaigned for the Presidency, he pledged to support CCA. But since he was elected, and we met with his people at the White House,=2 0they told us that he will not include long term services and supports in health care reform. When we heard that, we expressed our disappointment and anger in a peaceful protest outside the White House. The President responded by having us arrested, and there were very heavy fines levied against us. It feels like the President is trying to intimidate and silence us so we won’t speak up for people with disabilities, people with low incomes, and those who are aging who are at risk of being forced into nursing homes under the current law.”
Because the CLASS Act does not address the Medicaid “institutional bias,” people who use up the benefits they save under the act will still face having to move to nursing homes to keep getting assistance, unless they can afford to stay in their own homes because of other resources they have.
“When I voted last November, I was sure I was voting for a great man who would bring freedom to people with disabilities,” said Bruce Darling, ADAPT Organizer from New York. “Just as President Lincoln freed the slaves, I felt that President Obama would free those of us with disabilities from the continued threat of incarceration in a nursing homes and institutions. Now, I feel like a foo l, because this administration apparently cares nothing for us and has no respect for our freedom and our civil rights.”
###
Washington, D.C.--- The nation’s largest grassroots disability rights organization, ADAPT, expressed outrage today at the Obama administration’s selective endorsement of one piece of proposed long term care legislation while refusing to support a companion measure aimed at=0 Aeliminating the institutional bias in Medicaid for aging or disabled lower income people that Obama, with strong support from over 80 national disability and aging organizations, co-sponsored as a Senator.
July 6, Kathleen Sebelius, Secretary of Health and Human Services, sent a letter to Sen. Edward Kennedy, Chair of the Senate Health, Education, Labor and Pensions Committee, expressing President Obama’s support for Kennedy’s “CLASS Act,” which would allow middle class Americans to set aside money from their paychecks in anticipation of the expenses they will likely face for long-term services and supports as they age, or acquire a disability. After paying into the fund for at least 5 years, workers or their non-working spouses could draw on the fund for long-term services and assistance, either in a nursing home or in the community. Workers who wish could opt out of the program, an outcome more likely in tough economic times or in cases where low worker-wages barely cover individual or family survival expenses.
“Those of us with disabilities, who are aging, and who aren’t able to work are outraged that the President has issued public support for this primarily middle class legislation, and has completely ignored the companion legislation that would include lower income disabled and older people in reform of long term services and supports, and health care reform,” said Bob Kafka, Texas ADAPT Organizer. “It’s like we don’t exist!”
ADAPT and a multitude of other national disability and aging organizations in Washington have gone on record in support of Sen. Kennedy’s CLASS Act only if it is paired with a “fix” for Medicaid addressing lower income and non-working people, similar to provisions contained in the Community Choice Act (CCA). CCA inserts the concept of “personal choice” into the law, adding language that mandates states to pay for help in a person’s own home the same way the law mandates them to pay for nursing homes. Current law can force people with disabilities and who are aging into nursing homes in order to receive services that can just as easily be delivered in the community. Research has demonstrated that community-based assistance is almost always less expensive.
“When President Obama was a senator, he co-sponsored CCA,” said Dawn Russell, ADAPT Organizer from Denver Colorado, “and when he campaigned for the Presidency, he pledged to support CCA. But since he was elected, and we met with his people at the White House,=2 0they told us that he will not include long term services and supports in health care reform. When we heard that, we expressed our disappointment and anger in a peaceful protest outside the White House. The President responded by having us arrested, and there were very heavy fines levied against us. It feels like the President is trying to intimidate and silence us so we won’t speak up for people with disabilities, people with low incomes, and those who are aging who are at risk of being forced into nursing homes under the current law.”
Because the CLASS Act does not address the Medicaid “institutional bias,” people who use up the benefits they save under the act will still face having to move to nursing homes to keep getting assistance, unless they can afford to stay in their own homes because of other resources they have.
“When I voted last November, I was sure I was voting for a great man who would bring freedom to people with disabilities,” said Bruce Darling, ADAPT Organizer from New York. “Just as President Lincoln freed the slaves, I felt that President Obama would free those of us with disabilities from the continued threat of incarceration in a nursing homes and institutions. Now, I feel like a foo l, because this administration apparently cares nothing for us and has no respect for our freedom and our civil rights.”
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